Director/Sr. Director, Patient Advocacy Remote - United States

Company: BridgeBio Pharma
Location: San Francisco
Posted on: April 20, 2025

Job Description:

About MLBio Solutions & BridgeBio Pharma
ML Bio Solutions (ML Bio), a BridgeBio company, is a biotechnology company founded in 2018, yet the company's founders have been dedicated to finding a cure for Limb girdle muscular dystrophy type 2I/R9 FKRP-related (LGMD2I/LGMDR9) for close to twenty years. ML Bio is developing BBP-418, potentially the first oral treatment for patients with LGMD2I.BridgeBiois a biopharmaceutical company founded to discover, create, test, and deliver transformative medicines to treat patients who suffer from genetic diseases and cancers with clear genetic drivers. We bridge the gap between remarkable advancements in genetic science in academic institutions and the delivery of meaningful medicines to patients. Founded in 2015, the company has built a portfolio of 30+ drug development programs ranging from preclinical to late-stage development in multiple therapeutic areas, including genetic dermatology, precision oncology, cardiology, endocrinology, neurology, pulmonology, and renal disease, with two approved drugs.

Our focus on scientific excellence and rapid execution aim to translate today's discoveries into tomorrow's medicines. We have U.S. offices in San Francisco, Palo Alto, and Raleigh, with small satellites in other parts of the country. We also have international offices in Montreal, Canada, and Zurich, Switzerland, and are expanding across Europe.

To learn more about our story and company culture, visit us athttps://mlbiosolutions.com/ - https://bridgebio.comThe Director/Sr. Director, Patient Advocacy will lead the global patient advocacy function at ML Bio, reporting to the Chief Medical Officer. The Director will be responsible for shaping and implementing the global advocacy and engagement strategy at ML Bio and will ensure productive and enduring relationships with patient advocacy organizations supporting individuals living with LGMD2I/R9 and other alpha-dystroglycanopathies. The individual will align the advocacy strategy with the Medical Affairs/scientific platform and corporate strategies, lead global outreach to patient advocacy groups, and educate and support internal teams, ensuring they are aware of the needs and experiences of patients. The ideal candidate should thrive in a high-energy, dynamic work environment, be able to work both independently and collaboratively and maintain focus on the needs of patients and families. This is a critical role to the team because BridgeBio ultimately exists to help patients, and "putting patients first" is a core value.Responsibilities

• Maintain the highest level of ethics. Act with honesty, integrity, and transparency in collaboration with patients, families, and patient organizations
• Inspire a patients first mentality by communicating the "voice of the patient/caregiver" to internal teams and incorporating patient stories, imagery, and unmet needs in company activities and materials
• Develop and execute global patient advocacy strategy for the late clinical stage LGMD2I/R9 program at ML Bio Solutions, as well as development in other alpha-dystroglycanopathies by collaborating with internal teams that include clinical development, clinical operations, medical affairs, patient safety, legal, compliance, communications, commercial/marketing, and corporate development
• Conduct patient advisory boards and other activities to listen to the needs, experience, and opinions of patients and their family members at appropriate stages of clinical development
• Contribute to the organizational strategic planning process by providing patient and patient advocacy perspectives and sharing insights gleaned from interactions with those groups
• Display a thorough understanding of the latest compliance, legal, regulatory, and related matters affecting the biopharmaceutical sector regarding patient engagement, e.g., uphold confidentiality regarding sensitive scientific data and HIPAA-protected or GDRP-protected patient information
• Initiate and oversee the medical, legal, and regulatory review process for all advocacy communications and materials
• Oversee the advocacy budget and coordinate associated responsibilities, including managing grant and sponsorship requests by Patient Advocacy organizationsNo matter your role at BridgeBio, successful team members are:
  • Patient Champions, who put patients first and uphold strict ethical standards
  • Entrepreneurial Operators, who drive toward practical solutions and have an ownership mindset
  • Truth Seekers, who are detailed, rational, and humble problem solvers
  • Individuals Who Inspire Excellence in themselves and those around them
  • High-quality executors, who execute against goals and milestones with quality, precision, and speedEducation, Experience & Skills Requirements
    • Bachelor's degree (or higher) in a relevant life science field is required; a post-graduate degree in counseling, social work, genetic counseling, public health, nursing, pharmacy, or life sciences is strongly valued
    • A passion for helping and partnering with the patient community
    • A minimum of 5 years in patient advocacy/advocacy relations or a similar function in an industry role is preferred; Experience in rare disease is preferred
    • Demonstrated ability to build relationships with patient advocacy organizations, professional associations, or other stakeholders is required
    • Working knowledge of HIPAA and US and European guidelines for interactions with patients and patient organizations. A commitment to the protection of patients' privacy and interests and a strong sense of ethics is important for this position
    • Communicative ability in a second language would be highly valuable
    • The ability to travel up to 25% (often on weekends) is requiredWhere You'll WorkThis a U.S-based remote role that will require quarterly, or as needed visits to our San Francisco Office. The role will also require travel (-25%) to patient advocacy-related events and conferences.What We Offer
      • Patient Days, where we are fortunate to hear directly from individuals living with the conditions we are seeking to impact throughout the year and learn how we can improve our efforts
      • A culture inspired by our values: put patients first, think independently, be radically transparent, every minute counts, and let the science speak
      • An unyielding commitment to always putting patients first. Learn more about how we do thishere
      • A de-centralized model that enables our program teams to focus on advancing science and helping patients. Our affiliate structure is designed to eliminate bureaucracy and put decision-making power in the hands of those closest to the science
      • A place where you own the vision - both for your program and your own career path
      • A collaborative, fast-paced, data-driven environment where we inspire ourselves and each other to always perform at the top of our game
      • Access to learning and development resources to help you get in the best professional shape of your life
      • Robust and market-competitive compensation & benefits package (Base, Performance Bonus, Equity, health, welfare & retirement programs)
      • Flexible PTO
      • Rapid career advancement for strong performers
      • Potential ability to work on multiple BridgeBio Pharma programs across multiple therapeutic areas over time
      • Commitment to Diversity, Equity & InclusionAt BridgeBio, we strive to provide a market-competitive total rewards package, including base pay, an annual performance bonus, company equity, and generous health benefits. Below is the anticipated salary range for candidates for this role who will work in California. The final salary offered to a successful candidate will depend on several factors that may include but are not limited to the type and length of experience within the job, type, and length of experience within the industry, educational background, location of residence and performance during the interview process. BridgeBio is a multi-state employer, and this salary range may not reflect positions based in other states.
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Keywords: BridgeBio Pharma, San Francisco , Director/Sr. Director, Patient Advocacy Remote - United States, Executive , San Francisco, California